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      Mohsin Naqvi conveys PM Shehbaz’s greetings to Iranian President

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      Children in Gaza surviving on bitter loaves made from animal feed

      Israeli missile hits Gaza children collecting water

      Gazans face threat of cholera and other infectious diseases, says Oxfam

      Israel turning Gaza into ‘graveyard of children and starving’, UNRWA chief

      “ELECTION INTERFERENCE, KANGAROO COURT!” Trump says on indictment charges

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      Gaza death toll, 3000 children among 7028 casulties

      Gaza civil defence says 52 killed by Israeli forces

      Pakistan hopes to secure eighth term in UNSC

      Pakistan warns against Indian weaponisation of water at UN

      Israeli forces killed 50 rushing to humanitarian aid trucks, says Gaza medic

      20 killed in Israeli air strikes on Gaza

      Pakistan condoles martyrdom of 12 Turkish soldiers in methane gas poison

      Pakistan condoles martyrdom of 12 Turkish soldiers in methane gas poison

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      IMF expresses reservations over subsidy on sugar import

      Govt plans to slash petrol prices in upcoming budget

      Fuel prices likely to rise in Pakistan tonight

      Prime Minister launches URAAN Pakistan program

      PM Shehbaz vows structural reforms towards economic revival

      Pakistan, Russia vows to expand trade, economic ties

      Pakistan, Russia ink agreement to revive Pakistan Steel Mills

      Pakistan receives $2.3 billion from China

      Remittances surge over 26% to record $38.3bn in FY25

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      Humaira Asghar’s message to her brother for financial help go unanswered before death, report

      Murder allegations surface about mysterious death of actress Humaira Asghar

      Humaira Asghar’s post-mortem samples sent to KU forensic lab

      I celebrate my voice through my voice, says Miss Pakistan World Mia Sadique

      I celebrate my voice through my voice, says Miss Pakistan World Mia Sadique

      Humaira Asghar laid to rest in Lahore

      Humaira Asghar laid to rest in Lahore

      Humaira Asghar’s family refuses to receive her body

      Humaira Asghar’s initial post-mortem report revealed

      Murder allegations surface about mysterious death of actress Humaira Asghar

      Murder allegations surface about mysterious death of actress Humaira Asghar

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      5 Wickets, 5 Balls, Ireland’s Curtis Campher scripts history

      Indian broadcaster Sanjog Gupta appointed new ICC chief executive officer

      Indian broadcaster Sanjog Gupta appointed new ICC chief executive officer

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      Voice of Sindh
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      Doctors offer bogus treatments to blind people around the world, report

      BBC reporter who has the disease himself, undercover to expose them

      Web Desk by Web Desk
      in EDITORS PICK, HEALTH
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      Doctors around the world are offering false hope and bogus treatments to millions of people with an incurable condition that can lead to blindness. BBC reporter Ramadan Younes, who has the disease himself, went undercover to expose them.

      Lying in hospital for five days in complete darkness, bandages covering my eyes, I imagined what my life would be like with my vision improved.

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      It was 2013, and I had travelled to Beijing, China, after reading about a treatment for the genetic eye disease retinitis pigmentosa (RP). Six years earlier, I had been diagnosed with the condition, which means I’m gradually losing my vision and one day I could go blind.

      I raised $13,000 (£10,900) to pay for treatment that I was told could make my eyesight better and stop it deteriorating further. I was told it would change my life.

      When I returned to my home in Cairo, Egypt, I told friends and family that my sight was improving – but it wasn’t true. Nothing had changed.

      Month after month, I still feel my vision fading away. The condition means the millions of light sensitive cells at the back of my eye are gradually dying.

      There is currently no cure – just one approved genetic therapy that can stop the disease progressing, but only for some patients with a specific faulty gene. But it hasn’t stopped doctors around the world from claiming they can treat the untreatable, often at huge expense.

      In three years of investigating supposed treatments for RP, I spoke to dozens of patients like me who had been given false hope, and I met many doctors claiming to have miraculous therapies – in places as varied as Miami, USA, Russia and Gaza.

      In Gaza I met people living in refugee camps who had gathered thousands of dollars from friends and family to be treated with injections of glucose and vitamins, along with vibrating massage devices.

      I met patients in Sudan who were urged by doctors to travel to Russia every year and spend thousands of dollars on vitamin injections – which even a member of staff at the hospital admitted to me over the phone could not possibly work.

      But the case of Miami’s Dr Jeffrey Weiss – who says in his promotional videos, “I am treating the untreatable. I am treating people who have never had hope” – was the most disturbing, taking place in one of the most highly regulated healthcare systems in the world.

      The treatment is actually a clinical trial run by Dr Weiss, who performs the operation, and his colleague Dr Steven Levy, who is chair of the study and who has the initial discussions with patients.

      But unlike most trials in the US, which are funded by the government or private drug and medical device companies, in this case patients have to pay $20,000 (£16,750) to take part.

      One leading doctor – president of the American Society of Retina Specialists, Dr Judy Kim – told the BBC charging for a clinical trial went against widely accepted ethical guidelines and was “morally reprehensible”.

      I called Dr Levy, posing as a patient and secretly recording him, to see what he tells patients about the trial. He told me that it involved taking stem cells from the patient’s bone marrow and then injecting them under the eyelids and into the back of the eye sockets.

      He told me that Dr Weiss had treated about 700 patients with “no complications”, and “the vast majority” of patients experienced benefits.

      But former patients told me a different story. One, named Ahmed Farouki, said that after the procedure he found he could no longer see with his left eye.

      Since then, Mr Farouki said he has been telling his story on social media and warning others not to have the treatment. He said if he could speak to Dr Weiss, he would tell him: “Stop sabotaging people’s futures. Enough is enough.”

      Several other patients also told me they experienced complications after the procedure, including having debris in the eye.

      Tags: blindbogustreatment

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      Voice of Sindh is an initiative designed to uncover the untold stories of Sindh. It aims to preserve and promote the diverse culture, heritage, history, and traditions that make Sindh the bastion of pluralism and progress.

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